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The First Insult

I knew it would come at some point. I knew, having lived with my spouse for 9 years, that people are prone to saying thoughtless things. I knew that kids could be cruel. And I knew it would be a...

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Life with Ichthyosis: Judging By Appearances

Today we are pleased to present a guest post from Kyriaki, a friend from Down Under who we met online. What is it with articulate Australians advocating about ichthyosis online? —————————————- I grew...

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Let’s Talk, In All the Wrong Ways

We are excited to have SooAnn Roberts Pisano join us today! SooAnn is the mother of two boys with two different forms of epidermolysis bullosa and is an active voice in advocacy for those with...

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